• Challenges and Best Practices in Ethical Review of Human and Organizational Factors Studies in Health Technology: a Synthesis of Testimonies 

      Peute, Linda W.; Lichtner, Valentina; Baysari, Melissa T.; Hägglund, Maria; Homco, Juell; Jansen-Kosterink, Stephanie; Jauregui, Ignacio; Kaipio, Johanna; Kuziemsky, Craig E.; Lehnbom, Elin; Leite, Francisca; Lesselroth, Blake; Luna, Daniel; Otero, Carlos; Pedersen, Rune; Pelayo, Sylvia; Santos, Raquel; Silva, Nuno-André; Tyllinen, Mari; Van Velsen, Lex; Zheng, Wu Yi; Jaspers, Monique; Marcilly, Romaric (Journal article; Tidsskriftartikkel; Peer reviewed, 2020-04-17)
      <i>Objective</i>: Human and Organizational Factors (HOF) studies in health technology involve human beings and thus require Institutional Review Board (IRB) approval. Yet HOF studies have specific constraints and methods that may not fit standard regulations and IRB practices. Gaining IRB approval may pose difficulties for HOF researchers. This paper aims to provide a first overview of HOF study ...
    • Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients: Results from a Nationwide Survey in Sweden 

      Bärkås, Annika; Kharko, Anna; Blease, Charlotte; Cajander, Åsa; Fagerlund, Asbjørn Johansen; Huvila, Isto; Johansen, Monika Alise; Kane, Bridget; Kujala, Sari; Moll, Jonas; Rexhepi, Hanife; Scandurra, Isabella; Wang, Bo; Hägglund, Maria (Journal article; Tidsskriftartikkel; Peer reviewed, 2023-11-03)
      Background: Previous research reports that patients with mental health conditions experience benefits, for example, increased empowerment and validation, from reading their patient-accessible electronic health records (PAEHRs). In mental health care (MHC), PAEHRs remain controversial, as health care professionals are concerned that patients may feel worried or offended by the content of the notes. ...
    • The NORDeHEALTH 2022 Patient Survey: Cross-Sectional Study of National Patient Portal Users in Norway, Sweden, Finland, and Estonia 

      Hägglund, Maria; Kharko, Anna; Hagström, Josefin; Bärkås, Annika; Blease, Charlotte; Cajander, Åsa; DesRoches, Catherine; Fagerlund, Asbjørn Johansen; Haage, Barbara; Huvila, Isto; Hörhammer, Iiris; Kane, Bridget; Klein, Gunnar O.; Kristiansen, Eli; Luks, Kerli; Moll, Jonas; Muli, Irene; Raphaug, Eline Hovstad; Rexhepi, Hanife; Riggare, Sara; Ross, Peeter; Scandurra, Isabella; Simola, Saija; Soone, Hedvig; Wang, Bo; Zolbin, Maedeh Ghorbanian; Åhlfeldt, Rose-Mharie; Kujala, Sari; Johansen, Monika Alise (Journal article; Tidsskriftartikkel; Peer reviewed, 2023-11-13)
      Background: Although many surveys have been conducted on patients accessing their own health records in recent years, there is a limited amount of nationwide cross-country data available on patients’ views and preferences. To address this gap, an international survey of patient users was conducted in the Nordic eHealth project, NORDeHEALTH.<p> <p>Objective: We aimed to investigate the sociodemographic ...
    • NORDeHEALTH – Learning from the Nordic Experiences of Patient Online Record Access 

      Hägglund, Maria; Kharko, Anna; Bärkås, Annika; Blease, Charlotte; Cajander, Åsa; DesRoches, Catherine; Fagerlund, Asbjørn Johansen; Hagström, Josefin; Huvila, Isto; Hörhammer, Iiris; Kane, Bridget; Klein, Gunnar O.; Kristiansen, Eli; Moll, Jonas; Muli, Irene; Rexhepi, Hanife; Riggare, Sara; Scandurra, Isabella; Simola, Saija; Soone, Hedvig; Wang, Bo; Zolbin, Maedeh Ghorbanian; Åhlfeldt, Rose-Mharie; Kujala, Sari; Johansen, Monika Alise (Journal article; Tidsskriftartikkel, 2023)
      The Nordic countries are forerunners in online record access (ORA) which has now become widespread. The importance of accessible and structured health data has also been highlighted by policymakers internationally. To ensure the full realization of ORA’spotential in the short and long term, there is a pressing need to study ORA from a cross-disciplinary, technical, clinical, humanistic, and social ...
    • Users’ Experiences with Online Access to Electronic Health Records in Mental and Somatic Healthcare: Cross-Sectional Study 

      Wang, Bo; Kristiansen, Eli; Fagerlund, Asbjørn Johansen; Zanaboni, Paolo; Hägglund, Maria; Bärkås, Annika; Kujala, Sari; Cajander, Åsa; Blease, Charlotte; Kharko, Anna; Huvila, Isto; Kane, Bridget; Johansen, Monika Alise (Journal article; Tidsskriftartikkel; Peer reviewed, 2023-12-25)
      Background: Patient-accessible electronic health records (PAEHRs) hold promise for empowering patients, but their impact may vary between mental and somatic health care. Medical professionals and ethicists have expressed concerns about the potential challenges of PAEHRs for patients, especially those receiving mental health care. <p> <p>Objective: This study aims to investigate variations in the ...